681 frustrating days that we hope will improve the system.

Posted on: June 9th, 2017 by Meelee Parsons

When Allan* tried to appeal for retrospective care funding for his mother, he came up against a communication ‘brick wall’. Over two years, our expert caseworker worked with Allan to try and resolve the issues, culminating in a formal complaint to the Clinical Commissioning Group (CCG), which was upheld. Allan’s mother had been assessed as not eligible for NHS Continuing Healthcare (CHC) funding for two years between 2010 and 2012, before being assessed as eligible in March 2012. Allan had done his research and felt that the decision in 2010 had been wrong, so he employed …read more

A flawed NHS continuing healthcare assessment with severe consequences, and how it was put right

Posted on: November 15th, 2016 by Meelee Parsons

Yesterday The Continuing Healthcare Alliance published a report that highlighted the weaknesses in the NHS continuing healthcare (CHC) system, and called for improvements. The report flagged several problems, including with the assessment process. This process was clearly flawed in a case that came through our free Information and Advice Service recently… Sarah’s elderly father, Eric, has challenging health and psychological problems and requires extensive one-to-one support. Despite this, a panel concluded he wasn’t eligible for NHS CHC funding, and Eric was threatened with eviction from his care home. But experts on our free information and advice service spotted problems with the …read more

Christine was not informed when her ailing mother’s continuing healthcare funding was withdrawn, and was shocked when she received a bill many months later.

Posted on: September 30th, 2016 by Meelee Parsons

With free guidance from our Information and Advice Line team, Christine highlighted the flaws in management of her mother’s assessment and recovered more than £11,000 in care funding. Wynne was unable to make decisions for herself, so her daughter, Christine, held Lasting Power of Attorney and was her representative. However, Christine was not informed when a re-assessment of Wynne’s eligibility for continuing healthcare funding was arranged, and it took place in October 2014 without her knowledge. This review concluded that Wynne was no longer eligible for CHC funding, and a letter was sent to her at …read more

The Rip Off Britain couple who used their mother’s entire estate to fund care, leaving nothing for her grandchildren. They weren’t told about the free care funding from the NHS.

Posted on: September 27th, 2016 by Meelee Parsons

Beacon’s Managing Director, Dan Harbour, blogs about his appearance on BBC One’s Rip Off Britain, and the sadly familiar tale that’s leaving families with enormous care costs. Many months ago I was asked to record an interview for BBC One’s consumer affairs programme Rip Off Britain. They were putting together a feature on NHS continuing healthcare, and this morning the episode aired. The programme followed Mr and Mrs Pearson, who are facing a long, tough, battle to reclaim the quarter of a million pounds that Mr Pearson’s elderly mother – Kath – had to pay for …read more

Your essential guide to getting assessed for NHS continuing healthcare funding. Part 2

Posted on: September 5th, 2016 by Meelee Parsons

Part 2: The Full Assessment of Need – what is it and who completes it? If a Screening Checklist has been completed (see Part one) and indicates you’re eligible for a full assessment, your clinical commissioning group (CCG) should get the ball rolling to get this completed. In part two of our guide to the assessment process for NHS continuing healthcare, we will outline what to expect from a full assessment, who should be involved, and what it comprises. If you have questions or concerns about your Full Assessment of Need – or any other part …read more

“Led up the garden path, then cruelly let down.” The ‘rogue’ firms that came into continuing healthcare for a quick buck.

Posted on: July 20th, 2016 by Meelee Parsons

Beacon’s Managing Director, Dan Harbour, today appeared on BBC Radio 4’s consumer affairs programme You and Yours to lift the lid on ill-prepared claims firms that are letting vulnerable people down. Here Dan writes about his concerns and anger at these firms: Back in March 2012, a new deadline was set for retrospective assessments for continuing healthcare funding. This meant that people that had paid for their care between 2004 and 2011 had until 30 September 2012 to apply for a back-dated assessment of funding eligibility, or to appeal a decision relating to that period. People …read more

Your essential guide to getting assessed for NHS continuing healthcare funding.

Posted on: July 19th, 2016 by Meelee Parsons

Part 1: The Screening Checklist For most people, the first step in getting assessed for NHS continuing healthcare funding is a screening stage where a health or social care professional evaluates your needs against a Checklist. In part one of our guide to the assessment process for NHS continuing healthcare, we’ll explain when and how you can request a Checklist assessment, what it entails, and what happens next. If you have questions or concerns about the outcome of a Checklist assessment – or any other part of the continuing healthcare assessment process – you can talk …read more

After an unsuccessful three-year fight for recompense of health funding for her mother, Margaret was exhausted, ready to give up. Then she called us.

Posted on: July 4th, 2016 by Meelee Parsons

With free support and advice from Beacon CHC, Margaret fought against the unlawful practice of families having to pay top-ups for care – and received over £35,000. In January 2012 Margaret’s (not her real name) mother, who had Parkinson’s disease, fractured her hip and was admitted to hospital. In hospital she was assessed as eligible for NHS continuing healthcare (CHC) funding, and was discharged to a nursing home. Margaret was told that the Clinical Commissioning Group (CCG) that paid her mother’s CHC would not meet the full cost of the nursing home fees. The patient/family was …read more

Five things you need to know about eligibility for NHS continuing healthcare

Posted on: June 6th, 2016 by Meelee Parsons

Thousands of people across the UK need to receive ongoing care due to disability, accident or illness. For those that are eligible, the NHS funds the full cost of this care. Sound simple? It’s not. The eligibility criteria are complex and nuanced, and their interpretation is open to disagreement. We help hundreds of people each week to understand NHS continuing healthcare eligibility, and to challenge funding decisions when appropriate. Here we’ve put together five important facts about NHS continuing healthcare eligibility that you should bear in mind when preparing for your own, or your loved-one’s, assessment …read more